A little Break!!

   After my good news, I have been taking things a bit slower and am taking a little break from my blog for the next couple of weeks.

   I am headed back out to San Diego for a wonderful little vacation and to spend more time with both Brian and Meg.  This is all about total rest and relaxation and I am really looking forward to this trip.

   I'll be back early the first week in August and hope to have more time them to post more often and keep everyone updated.  

   I had Chemo this week (7/21) and it went great, with not ill effects now that I have the Zofran to take. I think that is the perfect anti nausea med for me and hope it will continue to provide me relief from the nausea and side effects.

   Have a wonderful week and please know I'm thinking of you all and happy for all the continued support and caring thoughts that continue to come my way!

Super News!!

Even though I am still NOT 100%, I do feel SOOOO much better than the day I ended up in the Hospital...and the findings from the CT Scan done that day were wonderful news, as I found out "yesterday' that the Brain Tumor has also decreased in size...a VERY good thing,.

  WOOHOO!  Both tumors are now smaller, which means that BOTH treatments are working. I'm having a follow up Open MRI for my Brain on August 25th, at Lahey in Peabody and will have another "Chest" CT Scan in about a month, as long as all continues to go well.

   While this is ALL great news.  I never eel like myself any longer and every day I feel kind of Yuk and that is taking it's toll on me this week. I would LOVE to wake up and feel kind of "good again" and that never happens.  It takes a good hour or so just to feel halfway alive and I always start the day with some nausea and a dull headache...not to mention the "Stiff" pain of living with Fibro.

  I try so heart o be upbeat and positive and I am, but I sure would LIKE to feel better and ever since that horrible day, I have not woke up ever feeling as good as I did before.  Not that even those days were perfect, but they were a A LOT better than now.

  Please bear with me, as I try to figure a way to feel like ME again  !   Thanks for the support and caring thoughts..they mater so much!

A rough week....

   Wow!  The battle has been a true challenge these past few days and I have been feeling just miserable.  Lots of intense nausea, light headiness and even some headaches...all on top of relentless fatigue not to mention and pain and stiffness of being in bed this much with Fibro too!  UGH!!

     Waking up this morning and feeling the worst ever, I knew it was time to seek more medical care and I started by calling the Oncology unit where I have my Chemo.   Chris, one of my nurses knew right away by my voices and symptoms that I needed to get in and I then slowly worked on getting dressed, getting Hubby home to drive me and taking care of feeding the Pups and such before I left.  I got there about 10, which as the plan and was started on IV Fluids, which Dr. Sunkura had ordered for me.  Unfortunately, she was at "Beverly" (one of the other Lahey Facilities)m, today and was not here in Gloucester, but she was only a phone call away and still took great care of me.  I also have Zofran (an anti nausea med) by IV and then she ordered a Head CT Scan to make sure the swelling was not worse.  I recently have been tapering off the "Steroids" and this can be a side effect of that.   Once the IV's we in place and I have the Zofran, I started to improve...and boy did that feel great.

   Took a few hours, but I am so happy I went and wound NEVER wait that long again.  The longest part was getting the "Pre-Authorization" fron my insurance, but once that came through, I had an appt in CT for 1:30 and that went well. I admit I am a bit apprehensive about this as it's the first CT of my head/brain since I had my Radio-static Radiation and that was planned to be in another few weeks.,..so I am kind of nervous, but HOPING the results will be good.  I will have them in the morning, so keep me and them in our thoughts!

    Now its' about 7:18 PM and I've had some Chicken Soup and still feel good...which is a good sing and I can eat and keep food in and NOT feel worse.  I've also taken more fluids and now have a new RX for Zofran which for me works and sadly the Compazine, was NOT helping ONE bit...so from now on I opt for Zofran and HOPE it will always work this well.

    Getting ready to go to bed early and excited that I did NOT have to cancel any plans for tomorrow..because I have cancelled quite a few in the past three days and really want to feel well and be back on track.  One week from now I hope to be at Fenway Park for the Billy Joel Concert with five of my Best BFF's.    We are taking a limo into Boston leaving from here at 3 PM....so excited and will make sure I'm feeling good, so I do NOT miss this event, which has been planned for days now

  Hugs to you ALL and thanks so much for your continue support and caring comments...they really mean so much to me!

THANKS a Million!!

Fantastic NEWS!!!

  The TUMOR has shrunk!!!  Yes, it is true and we were ALL thrilled to hear this news.  I had Chemo # 3 on Tuesday and was delighted to find out that we had this good news first.

  I am also excited because its' so soon and was not truly expected.  Now I hope that it will c continue to shrink more and maybe I will not have to have up to 20 more treatments?

 I'm also excited to have booked my next flight to Cali and will be off to visit Bran and Meg on July 29th for a very relaxing visit...ALL rest time and meg and I plan to go to the beach or hanging at one of the Hotel pools!  We'll use hats and an umbrella for me and the weather should be perfect

  Special  thanks for tall the KIND wishes, prayers and thoughts...!   I believe they all helped !!!