Thursday, March 30, 2017

News!!! Oh happy DAY!!

   I have been so behind in keeping up with this blog -- mostly because I have not been in treatment for so long and because there has not been a lot to report as far as the Cancer Battle goes.   For the last six months, I have been very lucky to have stayed stable - especially since they had to stop the "Opdivo" due to continued side effects with it causing me to develop low-grade pneumonitis.

   On Tuesday I was back at the hospital for my most recent round of labs and CT Scans and I admit I have been really nervous because I have had so much fatigue for the past several weeks.   Today, I went for back for the results and I am delighted to report that I am now NED (No Evidence of Disease) which means that currently there is no sign on cancer in my body --- WOOHOO!  The Opdivo clearly worked exactly as it was designed (at least for me) and even though they stopped it in late August, it apparently had been in my system long enough to teach my body how to continue to fight of the cancer.    I am elated!!   But in the world of  Cancer, you are not considered "Cancer Free" until you are NED for five years and ultimately that's something that would be very rare for anyone with Stage IV Cancer -- nonetheless, this is so happy news and is very promising.  It gives me more time and time is what we all need --- we will continue to hope that the "time" will be what we need to find a cure for me.

     I had to admit, I was pretty shocked, since I have been so fatigued lately and that always worries me, but my Potassium is low and we are double checking my thyoid, as it's likely they may both be the culprit -- plus, I do have Fibromyalgia and we that in itself can cause pretty severe fatigue.

    Now, I don't go back until late June, (except for monthly port flushes) and in June we'll be doing a chest xray and if that still looks good, I won't even need a CT Scan!  Woohoo!!

    I now plan to enjoy every day and to really push myself to get out more, spend more time with the kids and especially with Baby Harper -- it's wonderful to know that I'm doing well in the battle.  But, I admit, I know many who aren't and I'm so grateful to be one of the lucky ones.   I'm still going to support everyone who is battling Cancer and hope that we all can do well and beat this nasty illness!!

   One Day at a Time!!   Thanks so much for all and kindness and support you have provided to me these past two years.  It's hard to believe that two years ago Monday (3/27/15) that I was diagnosed
and now two years later, I have reached NED!  

Oh HAPPY DAY!!!

Sunday, March 5, 2017

Happiness is a Grandbaby...

Happiness is a Grandbaby....

.....And I am delighted to let you all know that my sweet Grand-daughter made her arrival 
on February 21st a few days after her original due date.  She's a healthly happy baby and weighed 9 lbs. 6 oz. at birth.   Mom had a very long and hard labor and after almost 32 
hours, Harper was safely and happily delivered by C-Section.   Needless to say, none of us 
had much sleep that Monday night and we all expected her to be born on Monday, but she 
just was too big and not ready to come out on her own!    We are all so thankful that she 
was never under and stress and was born perfectly healthy the following morning.  It was 
not so easy on her Mom, but's she is healing well from the procedure.   The kids are in 
LOVE with their little girl and they are both wonderful new parents, it all seems very
natural to them -- they are such a sweet little family.  

   She is an angel and has been a really good baby.  She sleeps and eats well and when she 
is up, she's very content and happy, they are blessed.   This picture was taken the day she 
was born the very first time I held her -- Instant LOVE!! 


  She is now almost two weeks old -- it's amazing at how fast the times flies by.  I am so in 
love with her -- it reminds me very much of the same wonderful bond I had when my boys 
were born.   The love is something you truly can't describe, it's the best!!   This little dress
 is  so sweet, too bad she's pretty much already outgrown it, as she has with many of her
"newborn" size clothes.  Thankfully, we did not buy a lot of tiny sizes and she still has lots
of of wonderful outfits to wear.   The first week she was home we had some fabulous Spring weather with record-breaking temps...it was wonderful.
   


   
   For now, my focus still on all things HAPPY -- the baby and my trip to see Brian.   I'll be 
back to the Cancer Battle soon, as my next round of CT Scans are coming up at the end
of the Month....and to be honest I'm not at all looking forward to them.   For some reason, I
feel like something is not quite right -- and it's never scans are never fun or easy.  They
always cause a significant amount of "Scanxiety" !!   It's hard to believe in some ways that
I've been in this battle for almost two years -- I hope I can continue to fight for a long long
time.  I want to have many years with this precious child!  

Thanks for stopping by -- I am thrilled to finally have my very own Grandchild --  she's 
the newest LOVE in my life.